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Do insurance companies have access to genetic information?

By Isabella Little |

Insurers can use genetic information available in medical files; the registered information in medical files is usually more accurate and complete than what is known by the insurance applicants. Since genetics is integrated in medical practice, insurers will have access more and more to genetic information.

Does the insurance company have a right to the results of the genetic testing since they paid for it?

GINA does not apply to other forms of insurance, such as disability insurance, long-term care insurance, or life insurance. Companies that offer these policies have the right to request medical information, including the results of any genetic testing, when making decisions about coverage and rates.

Why should insurance companies be informed of genetic diseases?

Individuals at risk of serious genetic diseases may fear loss of insurance coverage or higher rates, and thus decline genetic testing that could improve disease prevention, early diagnosis or treatment. Life insurance allows people to share the financial risks of premature death.

Do employers have the right to know your genetic profile?

Essentially, the Genetic Non-Discrimination Act puts you in control of your personal information. It is prohibited for any person to collect, use, or disclose your genetic test results without your written consent.

Can genetic testing be used against you?

Beyond policing, it’s possible DNA test results could be used against you or your relatives in other ways. The Genetic Information Nondiscrimination Act prevents health care companies and employers from using genetic data to deny you employment or coverage.

What is genetic discrimination and how can it affect us?

Genetic discrimination occurs when people are treated differently by their employer or insurance company because they have a genetic mutation that causes or increases the risk of an inherited disorder or they have a familial history of a specific health condition.

Can a life insurance company access a genetic test?

The insurance companies have — and, fortunately for us, so has a group of bioethicists from Columbia University, who in a commentary in this week’s Journal of the American Medical Assn. pondered the not-at-all distant future in which insurers will seek access to applicants’ genetic test findings before making their underwriting decisions.

Is there a moratorium on genetic testing for life insurance?

In it’s press release, FSC stated, “The life insurance industry will begin consulting on a new moratorium to stop using genetic test results as part of insurance applications, enabling every Australian to get up to $500,000 of life cover without having to disclose an adverse test result.” So what now?

Can a company use a genetic test to discriminate?

Federal law bans companies from using genetic information to hire, fire or discriminate. But critics say a simple blood or saliva test could eventually reveal so much about a person’s health and abilities that the urge to peek might be irresistible.

Can a company charge you more for genetic testing?

So there is concern over a bill that would let companies request genetic testing, and effectively charge employees more for health insurance if they refuse. The bill aims to clarify rules for workplace wellness programs. Employers would be able to offer discounts of up to 30 percent to those who participate.