Some disadvantages, or risks, that come from genetic testing can include:

• Testing may increase your stress and anxiety.
• Results in some cases may return inconclusive or uncertain.
• Negative impact on family and personal relationships.
• You might not be eligible if you do not fit certain criteria required for testing.

  Is it legal to perform genetic testing on children?

  The simple answer is that unemancipated minors have virtually no legal rights to obtain genetic or genomic testing without parental permission. The law does provide a limited set of circumstances in which minors can make their own health decisions.

  What are the ethical issues with genetic testing and research?

  These include respect for privacy; autonomy; personal best interest; responsibility for the genetic health of future children; maximising social best interest/minimising serious social harm; the reproductive liberty of individuals; genetic justice; cost effectiveness; solidarity/mutual aid, and respect for difference.

  What potential risks or concerns would you have about your genetic information being made public?

  Genetic privacy may be compromised if testing companies use your genetic information in an unauthorized way or if your data is stolen. The results of genetic testing may impact your ability to obtain life, disability, or long-term care insurance.

  Why you shouldn’t do genetic testing?

  Results of genetic testing can often be uninformative and ultimately can cause more stress and anxiety over the possibility of a disease you may never get. Genetic testing should be encouraged only when there is effective therapy available to prevent or treat the condition tested for.

  Can you refuse genetic testing?

  Although there are clear legal precedents stating that adults are free to refuse even potentially beneficial testing and treatment, legal precedents provide that children can be treated without their consent (and over their parents’ refusal) to prevent serious imminent harm.

  How is genetic testing done on a child?

  Genetic testing is performed on a small sample of blood, tissue or saliva. Some genetic tests look for specific variations or analyze certain genes. These tests, called gene panels, are used when the physician ordering the test has a good idea about what genes could be linked to the symptoms or conditions.

  Is genetic testing good or bad?

  There is little value in genetic tests that do not allow you to take action to reduce or change your risk for a particular disease. In other words, genetic testing is a good idea only when the pros of genetic testing outweigh the cons for your situation. It’s shouldn’t be a one-size-fits-all approach.

  Who should have access to genetic information about a person?

  A clinical geneticist believes that if anyone is to own genetic information, it has to be all those who have inherited it and, more importantly, it must be available to all those who might be at risk. The question, she says, is how to balance a right to privacy with disclosing risks to others.

  Is it a good decision to not have a child?

  The decision of whether or not to have a child is the most important one of our life, and thus parenthood shouldn’t be entered into casually. As with other big life decisions, such as whether or not to continue with school following high school, the path most often taken is not the one for everyone.

  How are children involved in the decision making process?

  The following decision-making model illustrates the process of decision making for an organisation. This model maybe used to assist with determining at what stage children are involved in decision making and of what benefit their involvement is for the organisation and the children.

  Are there any scientific reasons to not have kids?

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  What was the role of parents in decision making?

  Although most children of this age accepted that parents ‘can have the final say’, should they choose to, they did not regard parental authority as absolute. Parents had to demonstrate that they were both ‘competent’ to make a particular decision and that the decision was a ‘good’ one.